HCC Registry

Data collection registry (Hepatocellular Carcinoma (HCC) Registry): A retrospective and prospective analysis of hepatocellular carcinoma.
 

Purpose: to generate a deep analysis that is multidisciplinary to understand the management and care of hepatocellular carcinoma (HCC) at BUMC-Tucson that has taken place in the past decade

Retrospective portion: This study will examine the medical records of all patients who have been seen at BUMC-Tucson with a diagnosis of hepatocellular carcinoma (HCC) since 2013. The goal is to better understand how patient demographics, diagnostic testing, and how different treatments affect the course of the disease. This study will also have a prospective portion in which patients’ consent will be obtained to follow them throughout their treatment course and possibly contact them regarding any clinical trials or research study they might be eligible to participate in the future.

Specific aims:

-Highlight the difference in patient demographics and their correlation to progression of disease/ detection of disease through age, gender, race, and ethnicity analysis
-Evaluate the effects of early diagnosis
-Changes in treatment patterns at different stages of the disease and how that affects outcome
-The effectiveness of different treatment regimens
 

Evaluate the outcomes of different treatments by analyzing:
- the  time to recurrence
- time to progression of disease or metastasis
-overall survival rates/status
-rate of complication of disease
-the effects of different comorbidities on survival rates
-burden of the disease

By participating in the HCC Registry, the patients’ medical records at all University of Arizona Health Network clinics and University of Arizona Medical Centers will be reviewed, and data points will be collected in a secure database. Using this information, we will be able to identify opportunities for improvement in the care of hepatology patients in Southern Arizona.